I have been having trouble breathing lately and very short of breath most of the day. My doctor has switched me from symbicort and spirvia to nebulized brovana and budesonide. She feels this will get deeper into the lungs. Any one else taking these medications? I mentioned yuperli and she felt this would be better. I have to do both of these twice a day. The inhalers seem so much easier but if they don't help I guess I have to drag out the nebulizer.
Any suggestions on a nice quiet and fast jet nebulizer? The one I have is very loud and seems slow.
Thanks to all I have learned a lot just by asking questions, I will find out about the mask as soon as I can , it might be awhile to keep from having to make a trip to the provider , I never heard about this mask before. I have to go to rehab today , will be back later Don if you have another game.
Sandy: There is a hose attached to the mask just like a cannula. I have had sinus problems for as long as I can remember; probably a deviated septum or something but at the stage I'm in, I don't think this body could tolerate any kind of surgery.
Audrey: I use the Ayr gel and saline spray also but I think taking daily mucinex expectorant which my doctor told me to do is a no-no. Took it this morning but am stopping it to see. The side effects listed don't take in account daily usage.
If you need a mask to accommodate the mouth breathing, your oxygen supplier is supposed to provide it ,but your doc may have to let the supplier know.
These are the kinds of conversations we need, or that I like anyhow, Took a pill last night to stop the running of the nose , later I could suck air through the right side some and the left side was plugged up , this morning it feels like both sides are plugged up if I try to suck in air, no way to get help from pulse dose that way. I can turn the dial up as far as it will go on the Oxygen tank but if you can not suck air the dose won't work well. Yes, I can probably use some of the gels to moisten the nose, that would be quite often. Audrey since your nose does not seem to bother you is yours just a preference for continuous ? I would not mind the pulse except for my nose, and I am going to have a heck of a time when I decide I have the money for one to wear over the shoulder, because only a couple have the continuous and not completely . Don I might call these people I am trying to figure out how the mouth breathing gets the oxygen you need with the mask.? I am dumb. I sent an E-mail a few months ago to the people that make that Boost , oxygen in a can and they replied , they mainly have a lot of people who climb , but said also people with medical problems also use it , but its best to ask your doctor , they have to say that , I had thought about getting a can. I also want to find a way to get some extra tanks at least one or two.
Don the link you posted looks like a cpap mask. You would not be able too eat or talk with it on.
I think you are just not getting as much oxygen with a pulse dose regulator. Just breathing through the nose didn't make a difference for me.
Back to my story, back track a bit for a few years now have had anyone in the medical field say breathe through you nose I begin to think they were nuts because I could not do it very good, my nose was stuffy . so I have found out it could be numerous things , anyhow ,once in awhile very seldom when my nose does not feel as stuffy I can breath through my nose, and they have me do it at rehab. I used the neti bottle today and done the salt rinse. With the oxygen bottle working I was able to get out of car at hospital and walk a few feet into the lobby and then later down to rehab , where they turned mine off and used there's.
Anyhow, yesterday the guy took the gauge contraption and put back on , "Yep that's right " another pulse one, and told me I needed to breath through my nose , or I could put it in my mouth , I did both, the guy probably had know idea that I did not do well on this. We got to the parking lot of the professional building and sometimes we use the valet, but he parked in a handicap parking space and it was not but a few steps further than hospital into the lobby, but it was very hot , I doubt if I even took a breath getting across to lobby I just wanted to hurry I could tell I was getting in trouble( This is something I still do, but not intentionally , I forget to try and breath through my nose when I get up to do anything most of the time) so when I got sat down I was real weak my oxygen was 72 and heart rate was 145 and that was after I found my oxy meter. Evert said are you breathing with your nose, well I started trying , by trying and pulse lip breathing after about 20 minutes got it into 80's , he turned it up from 2 to 6 on the oxygen, another 15 minutes got into low 90s , I had a portable nebulizer with me , I thought well surely a shot of Albuterol would help me, it
helped a little till I said I needed to go to restroom before we went up to 2nd floor to Drs. office. after I finished and came out of there I was almost falling out of there , Oxygen was already back down in the mid 80's. what I did not know was that the numbers on it could be turned up to continuous and guess Evert did not think about it either set it on that and I was okay. The guy had told him it would last about 31 hours on pulse, but we do not know on that tank how long continuous would last. So as long as I do not do well on pulse I need some continuous to get somewhere when out of the house. Sorry this is so lengthy, Don you can delete it after a few days if anyone ones to read it. I have that other one that happened in Feb I never posted.
I would be interested about anyone else that has problems with pulse I think Audrey does if I can get her to tell me more.
All I know is I'm glad you're feeling better!!!
I have a home-fill system that I own; three tanks and two gauges, both gauges are fine but one tank won't fill all the way so I guess tanks can go bad.
I am feeling better today,Yesterday I had sort of a rough day not thinking , we went to the provider of my oxygen first , One of the tanks I have is tall and skinny and on wheels , I had exchanged some time ago the pulse one for a continuous one, sort clumsy using it but I liked it , we have been going to rehab, and almost every time we left the we might be part way down the road, the gauge part comes loose and it starts spraying and using up the oxygen, my husband has to hurry quickly and shut it off , then its alright till I get back home. The hospital has discontinued them due to this problem. anyhow the guy came out and said yes they had been having problems with them and I will finish this later in about an hour I do not want to retype.
sister_ Petra ... I did not switch drugs but I stopped one until I could. The Brovana may have been my problem, anyhow seen Pulmonary yesterday told her, and ask about Perforomist, she gave me samples so I can see how it does and then place an order for it . Now she gave me another thing to try Seabri or Seebri
neohaler a capsule that is like spriva that I have never used , you puncture the capsule and inhale the powder, I have only done it once but I immediately felt able to breathe somewhat better. So now I am taking Budesonide and Perforomist. However, I felt like I had eaten a bag of prunes , so I don't know if it might have been one of these new medicines or a food, or combination. anyhow I have to go to rehab tomorrow and so I am not taking either in the morning , then I will have all weekend to see how it works. (4 days) Do you ever go to that suggested inhaler -I look at it for information only . To see ingredients in things.
http://www.emphysema.net/inhaler_sequence.asp I will skip to next section for additional information.
Need some information on these medications for nebulizers, I have had my suspicions about Brovana for awhile, I was reading up on it and the side effects are the big part of my problem, high heart rate , urinary
problems, for some time now have been getting up every hour after about 1 am with pressure to urinate and then it gets to feeling like an infection, needless to say I do not get much sleep. I go to lung doctor Tuesday and I am going to tell her I would like to get off of it... I stopped taking that Yupelri maybe it was okay. I was wondering about that perforomist.?
I had just done a prednisone burst last week also.
Audrey: Think about upping your prednisone and using the duo-neb; pursed lip breathing and using the acapella. Ask your doc about "Daliresp." I know this disease affects us all differently but I pray, try everything.
My fev1 is about 12% but I try to walk on the TM every day - I plan on being around 'til the Lord says different.
My breathing was so bad this morning it was scary. I am afraid to take it again.
it takes a long time to see improvement with this type of med, Audrey. 4 days is not enough time to see benefits/improvement.
Thank you for all the replies. I think I won't be able to use Brovana. It hasn't helped and there is no improvement over my regular inhalers. I used it four times since Thursday. Today I had to take Spiriva and I will take Symbicort tonight instead. I just can't get air moving any more.
actually, Sandy, the albuterol is recommended as "rescue". I use it, but generally only in late afternoon or sometimes after a meal. Just be sure it is ONLY albuterol (salbutamol).
read the information paper enclosed with the Yupelri, Sandy. You cannot use ipratropium with Yupelri. Please see section 7,1 re anticolinergics.
Audrey, I use Budesonide and Brovana twice a day and have for over 3 years now, It makes a little noise from the nebulizer but it only takes about 4 minutes or so for each one, I just recently started that Yupelri once a day, it seems to take a little longer I also have on hand the albuterol and Ipratropium on hand that I can use if I choose,all of these for the nebulizer and had I not posted anything on the Yupelri, because I had really not noticed anything on the listed side effects, Have been having some bladder problems , (Nothing new) would like to know how it started over a year ago. but anyhow typed in Yupelri Urine retention, and there was some to say about it, however that does not mean that it has anything to do with my problem, I have seen a hand held Nebulizer several times lately , don't know if that's what Don showed or not, and I did not pay alot of attention to it.
I just called my pharmacist and he said that you cannot use Brovana in an Ultrasonic Nebulizer - so sorry Audrey, you'll have to put up with the noise - use earplugs . . . . . :=) You might push for the Yupelri.